Thursday, October 30, 2008
We drove up to their apartment to park then we hit the train to bring us into the heart of the city. Emily chose a great Mexican restaurant for lunch and we just sat there and talked for almost 2 hours! Then we decided to walk off our lunch by checking our Columbia College (Trevor would like to attend this school), the Art Museum, Millennium Park, The magnificent mile...Just to name a few... We walked off our lunch and more! Our final stop was Garrett's Popcorn, it was delicious and a perfect ending to our perfect day!
This is a tradition I hope to keep with Trevor well into his adult years. We all go to the city pretty often which is great! Before I met CJ when it was just Trev and mom several years ago, we would hop the train for a day at a muesum, the zoo or just to walk around and shop. I love this time with him. He's growing up so fast, I love him so. =)
Mom and Trevor...He's so TALL!
Sunday, October 26, 2008
I won this dress through auction at this site http://bringinghomerachel.blogspot.com
Please go to this blog. This family is trying to raise funds to bring their precious daughter Rachel home from China.
Click on the picture to see the detail of the dress. I LOVE this pattern! This dress will be Linzhi's. First of all, it's size 2T which is Linzhi's dress size...Yes, my almost 4 year old is still is a size 2T for dresses (she's a little peanut!) AND I want her to have a special dress for a keepsake AND all the proceeds go to bringing this precious child home.
Not much else to report around here. It's been pretty quiet. Trevor and I went to Chicago to visit my sister Emily and her boyfriend Mike. We had a great time, I'll post about that later in the week with pictures.
Have a wonderful Monday!
Sunday, October 19, 2008
A few have asked what is Arhtrogrypsois. Here is some information I received from stuff I've dug up on the Internet. All is in aligned with the doctor that sees Linzhi at Shriners. **Please note, Linzhi only has it in her elbows, hands, fingers and wrists. She is considered mild because it has only affect her upper exteremities.
Arthrogryposis is the name given to a group of disorders characterized by multiple joint contractures throught the body present at birth. In the U.S., it occurs about once per every 3,000 live births, and affects both males and females of all ethnic backgrounds.
CausesArthrogryposis is usually caused by decreased fetal movements in the womb. The fetus needs to move his/her limbs to develop muscle and joints. If the joints don't move, extra connective tissue develops around the joint and fixes it in place. Some of the causes of decreased fetal movements are:
· Malformations or malfunctions of the central nervous system (most common cause), such as spina bifida, brain malformations, or spinal muscular atrophy
· An inherited neuromuscular disorder such as myotonic dystropy, myasthenia gravis, or multiple sclerosis
· Maternal infections during pregnancy such as German measles (rubella) or rubeola
· Maternal fever above 39 C (102.2 F) for an extended period, or increased maternal body temperature caused by prolonged soaking in hot tubs
· Maternal exposure to substances that can harm the fetus, such as drugs, alcohol, or phenytoin (Dilantin)
· Too little amniotic fluid, or chronic leaking of amniotic fluid, may cause reduced space for the fetus to move around
SymptomsThe particular joint contractures found in an infant with arthrogryposis vary from child to child, but there are several common characteristics:
· The legs and arms are affected, with wrists and ankles being the most deformed (think of the fetus folded up inside the uterus, locked in that position)
· The joints in the legs and arms may not be able to move at all
· Muscles in the legs and arms are thin and weak or even absent
· The hips may be dislocated
Some infants with arthrogryposis have facial deformities, curvature of the spine, genital deformities, cardiac and respiratory problems, and skin defects.
TreatmentThere is no cure for arthrogryposis, but early vigorous physical therapy can help stretch out the contracted joints and develop the weak muscles. Splints can also help stretch joints, especially at night. Orthopedic surgery may also be able to relieve or correct joint problems.
Ultrasound or computed tomography (CT) scan can identify any central nervous system abnormalities. These may or may not require surgery to treat. Congenital heart defects may need to be repaired.
PrognosisThe life span for an individual with arthrogryposis is usually normal, but may be altered by heart defects or central nervous system problems.
Information for this article was taken from:Chen, H. Arthrogryposis. eMedicine, accessed at http://www.emedine.com/ped/topic142.htm
Saturday, October 18, 2008
My cousin Lindsay is half way through chemo and is doing pretty well... Good and bad days but seems to be doing her best to take one day at a time. Here is a link to her Caringbridge website if you would like to read her posts. http://caringbridge.org/lindsayspringer
Here's an update from the aunt of Julia, the little girl from China that is going through treatments for Lukemia. I posted about her with a picture some time ago.
Tuesday Julia had her chemo along with spinal tap and a bone marrow aspiration. Julia's doctor called to tell us all results came back good, meaning the bone marrow sample showed fewer leukocyte cells, (chemo is working) and once again, spinal tap showed no sign of cancer cells in her spinal fluid. YEA!!! I have to tell you all I was surprised by the phone call even though Dr. Daggert clearly said she would call, but somehow I already knew her results were good. It is like what the bible says, "It's a peace that surpasses all understanding." I am so grateful to be spiritually at this place. Not to say there are not moments when I want to fall apart, or that it's not extremely difficult to watch Julia go through these brutal intensive treatments that play such havoc on her tiny body, but I am very positive on her outcome. We still are grateful for good results, and continue prayers for them, but Brian and I continue to stand in faith that ALL her results will be positive from now on.
Julia did get a platelet transfusion Tuesday which seems to be a trend with her. They usually perk her right up.
Again, I thank each and every one of you for your continued prayers. There have been so many acts of kindness shown to our family and we are sincerely humbled. Julia has been provided with so much love, support and distraction from the invasive procedures. Many of you have replaced her tears of pain with smiles of relief. We thank you so much.
Please continue to pray for sweet Lindsay and Julia!
Thursday, October 16, 2008
Tuesday, October 14, 2008
After the teens headed over to the local pizza place, we took the girls to a different area of the farm to visit the quarter horses, goats, chickens, turkeys and ducks. Miss Rachel LOVES animals, she's my nature girl so this was the highlight of the evening for her. She loves to feed and pet as many animals as she can. Now, Linzhi is a different story, like her mama. I will look but please don't ask me to touch! LOL... It was so precious to see them running around enjoying their first fall together. This weekend coming is the annual "Night at Sleepy Hallow" it will be held at the same farm. It is a fun time for both little kids and bigger kids. This will be Linzhi's first time at Sleepy Hallow and the pumpkin patch which we're going to try an squeeze in as well. I vividly remember last year at Sleepy Hallow when we were so close to leaving for China to pick up our little one. I can still see Rachel at the craft table making a trick or treat bag and my thoughts were "next year, she'll have her sister to share life with..." So this year, I will be snapping pictures of my little girls sharing the Sleepy Hallow experience together, I know my heart will be full. Trevor will be there too, he volunteers for the hay rides so I'm going to sneak some pics of him too!!!
We ended our night with a yummy dinner at Cracker Barrel. Now, that was the highlight of my Linzhi's night. She loves to eat...Just like mama, oh and daddy too! =)
Have a wonderful Wednesday!
Beautiful Perry Farm
Sweet baby Rachel loving on the quarter horses.
Time to clean out the shoes...Monkey see, Monkey do!
Miss Linz trying to figure out if she likes the quarter horses??? Not so sure...
hhmmm....is that a tongue I see sticking out of Linzhi's mouth??? Rachel in the background noticing before I did!
My little one LOVES little ones...