Coming up for air...beware, it's a long post!
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Waiting for the doctor to tell us what to do after she consulted the Cardiologist. |
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At the doctor before everything came to a head. |
I have started this post a few times in my head but for the life of
me I have been to exhausted to type. I'm going to way back to
Guangzhou...
We had an absolute wonderful time in
China. I loved almost every minute of it! CJ and I both got a little
under the weather the last couple of days which kept us from having a
good-bye dinner with our new friends Ken, Gina and Naomi. What a
blessing to us to meet this precious family!
The
evening before we left, we ordered room service and took our time
packing. It was an early evening as we had to be in the lobby at 6:15am
to meet our guide so we could head to the airport. If you've ever
stayed at The Garden Hotel in Guangzhou, China you will understand our
desire to have one last breakfast in the cafe. Thank goodness, they
opened at 6am so we had a few minutes to enjoy some hot tea and a little
breakfast. Once we got in the van and started heading to the airport, I
got a little teary thinking about Grace leaving her homeland. I have
felt this way every time I have traveled home with one of my China
girls, Rachel felt the same way too as she enjoyed her time discovering
where her sisters once lived. Overall, it was a precious time and we
are so grateful to God for allowing us to bring another treasure home.
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Love. |
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being goofy. |
The travel home was long and uneventful (thank you Jesus). We did
have a bit of a lay over in Beijing but nothing too bad. The flights
were pretty much smooth and both girls did great! Arriving in the USA
was a wonderful thing, we made it through immigration with no issues and
our baby girl became a US citizen on April 18th, 2012. God is good!
We
came home to lots of family, food and presents!! Both Linzhi Rose and
Madelyn did some garage sales with Grandma and Grandpa and spoiled all
of us rotten! Once everyone went home, it was time to get everyone down
to sleep so mama and dad could fall into our beds. Like tradition, we
pulled their mattresses into our room so everyone could be together and
thanks to Trevor, they were all set up for us. Trevor being 19 now, opt
to sleep in his own room! :)
Our first night was short
as both CJ, Madelyn, Rachel and Gracie were all up at 1:30am...Yes,
Madelyn was up too! It was funny some of our kids that didn't go to
China experienced some jet lag too! They all finally went to bed around
3am as I was walking down stairs because I was wide awake. I kind of
enjoyed this time alone, I was able to read my bible, sip my tea and
completely organize my downstairs. When I finally got tired around 8am,
my house was clean!
Our first full day home (Thurs)
was sweet as little miss looked around and explored her new home. Of
course, all the mother hens in the family were right next to her every
minute of the day. I made myself get up at noon so I could get to the
grocery store and get stuff going for dinner. Everyone hit the hay at
8pm and we were all mostly up at 4am. Good times!
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Getting discharged from her cardiac cath. |
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Comfort food for my baby at Panda Express. |
Friday proved to be a different kind of day. Gracie had her
appointment with the pediatrician at 1:30pm. I was still not feeling
100% but I knew she needed to get her check up for China regulations.
If I had it my way, I would have rescheduled for Monday but I pulled
myself together and brought her in with Linzhi. Things started to move
very fast from this point on. Little miss gave us all a scare as her
pulse/oxygen levels were dangerously low at 76, normal and healthy is
100. Our pediatrician knew we had an appointment with a cardiologist
referred to us by Linzhi's surgeon the following week but told me, she
could not let her leave the office with her pulse/ox that low. I said
to her "do whatever you need to do, I will follow your lead" and are we
ever grateful for Dr. Z and Jesus! Within minutes, she had a pediatric
cardiologist on the phone and he quickly started ordering test...Echo,
EKG, blood work and chest x-ray. Once things started, Dr.Z grabbed by
hand and said to me very seriously, "you need to pray she's treatable".
I reassured her, we have been praying for her health for over a year. I
stayed calm, got my phone, called CJ and within a few minutes he was at
the office, Trevor was able to stay home from work with the other girls
and someone from church was bringing us a planned meal. God had
everything under control. We were able to do the blood work and EKG at
the doctors office but for the Echo and and chest x-ray we went to the
local hospital as directed. Gracie's new cardiologist, Dr. G, wanted up
to the minute images sent to him (bless his heart), by this time it was
well into late afternoon on a Friday and both doctors stayed in touch
with us the entire time. We felt God's hands holding us the entire
evening. Poor little miss held it together until the time the tech
began the Echo of her neck. She was in an awkward position and the poor
thing couldn't take it anymore, she let herself go and this was the
first time we saw our baby girl cry. Mama couldn't hold it in either so
I held her tight and both CJ and I prayed for our little brave flower.
In the back of our minds, we knew there was a great chance she would
not be treatable, not even healthy enough to discuss transplant, we had
to wait for our doctor to call us back the next day after she and Dr. G
had a chance to discuss her diagnosis. Once all the tests were finished
it was around 8pm. Gracie was starving and CJ and I both needed to sit
for a minute without too many interruptions to just process all that
took place within a matter of 6 hours. As we sat at the table waiting
for our pizza we were both amazed at how quickly God moved. We knew He
was in total control and we needed to feed our baby, go home to all our
kids, get them to bed and pray we could sleep too. I knew it was going
to be a long night with jet lag, praying and maybe
some
lots tears. But the Lord had other plans for His weary children. He
gave us rest in some beautiful words that came from a call on my cell as
we waited for our pizza. Dr. Z. called and I could tell in her voice
it was diagnosis. She talked a lot and very fast, please don't ask me
what she said because I can only remember one word. *treatable* Yes,
Praise JESUS! Our baby is treatable! TREATABLE!!!!!!!! I will never
get tired of that precious word!!! PRAISE THE LORD, GRACIE FAITH IS
TREATABLE!!!
A lot took place as we were waiting for
that pizza! What a blessing to be able to bring Amazing-God news to our
worried children at home. Thank you Jesus!
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true love. |
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Crazy Hair girl! Rachel designed this picture from my iphone. |
We were quickly scheduled to meet with Dr. G the following Monday at
his office an hour away. During the weekend we all needed to to just
decompress and just process all that took place. We had a visit from
Grandpa and Grandma and my sister Sage and her friend Lindy. They
brought a big bag of sweet little outfits for Gracie and some sweets for
all. Sunday, we went to church and then our dear friends, the Blair's
cooked us dinner at their house. We had a wonderful visit with them and
their daughter and son-in-love. And before we knew it, we were sitting
in Dr. G's office going over details of our little one's heart. CJ and
I are so very grateful we were directed to this particular doctor. He
is amazing. Sweet and tender with our baby girl. He has worked with
orphans from China before so he was not surprised at certain things.
While we were on the flight home, I was able to have a lot of time in
prayer and the one thing I kept asking the Lord was where? Where do we
bring her? Where is the right hospital? Where is the right Dr.?
Well, that Friday afternoon on April 20th. He showed us exacted WHERE HE wanted Gracie to be. No doubt in either of our minds.
So... here it is...
Here is little peanuts diagnosis... and it's a biggie!
- Heterotaxia.
- double outlet right ventricle.
- pulmonary stenosis (this is the reason she is treatable-THANK YOU JESUS!)
- Common AV valve (she has no tricuspid or mitral valve, just one common)
- Unbalanced AV canal.
- The right side of her heart is enlarged but Dr. G is not concerned at all.
- In the center of her heart is a hole, we were assured it can be closed.
And we discovered through an abdominal ultrasound, Grace has no
SPLEEN! (this was not a surprise to Dr. G, that's why he ordered the
ultrasound).
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My baby Grace. |
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Gracie's first bike ride, yes she's wearing her heart monitor and NO, I did not let her over do it. :) |
May 9th, 2012
Last week, Gracie had a cardiac cath
done and it required her to stay overnight in the hospital. As much as I
wanted her to be home but the Lord wanted us to stay and I am so
grateful to have been able to stay with her and meet so many of the
doctors and nurses that will be taking care of our flower post-op. I
was also able to give our testimony and share our burden for orphan care
with 2 doctors and 3 nurses, all of which have the heart to adopt! How
Great is our GOD!!! One doctor even gave me the biggest hug for
bringing little miss home. I couldn't express to her enough how
blessed WE are for the blessing of this child. (all of our Children).
It was so cute to watch as I explained how our family was knitted
together, by my womb and through our hearts. And they were all shocked
to find out my eldest child is 19!! That made my day. :)
Once
home, we spoke to nurses Katie and Julie, they went over what is going
to take place during surgery and gave us her surgery date.
Gracie
is now scheduled for her first open heart surgery on May 24th. She
will then have her second open heart 4-6 months after that date. CJ and
I both feel completely in awe of how quickly the Lord has moved for His
little girl. Exactly one month ago today, Gracie was placed in our
arms and to think now, one month later we know exactly what her heart
condition is and a plan in place to repair her precious heart! Knowing
how the Lord is working on behalf of little one sure puts me in my place
once and for all about fear and doubt. I cannot even think to
disrespect Jesus by questioning or doubting anything about this
situation. We have complete trust and faith in our Heavenly Father. As a
mama, I do carry a very deep pain in my heart and that is for my
children. The girls are so in love with their baby sister and of course
Trevor too. We're doing our best to comfort and prepare them for
what's to come as far as recovery but there have been moments of tears
and expression of worry, so all we can do is hold on to each other and
pray. I know by witnessing how the Lord is working will strengthen our
children's faith in Jesus even more.
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Getting ready to play outside in the beautiful weather. Love the background of Trevor's old car and the neighbor's trash cans. sigh... |
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Linzhi, too cool for school with her shades. Gracie has crazy, hard to tame hair! |
This Friday, May 11th. We are meeting with Dr.I. He is the artist
that will repair our baby's heart. We were told, Gracie needs an artist
to repair her heart and Dr. I is that indeed! Every person I have
spoken to, whether it be a CNA, Nurse, Doctor or the gal that scheduled
our blood donation appointment had nothing but WONDERFUL things to say
about Dr. I. I cannot wait to meet with him on Friday. He likes to
meet all his kids before surgery and meet their families. We decided to
bring the girls, unfortunately, Trevor has to work otherwise he would
be coming too.
Do
you ever scratch your heart in bewilderment at how the Lord works so
personally in your life, like to the very last little detail? Well, the
day of Gracie's cath. My mother and father in law came down to babysit
and before we left grandpa prayed over little Gracie (as she cried) and
we all prayed for an opportunity for a mandarin speaking nurse or
doctor that would be able to explain to Gracie what is going on. This
is a little too advanced for Madelyn as they are both from different
parts of China, the dialect is different so there are times when Madelyn
has no idea what Gracie is saying and vice versa. So, the day of the
cath, we did not meet anyone that spoke mandarin however, a couple days
later, Dr. I's nurse Katie called me and wanted to know exactly where in
China little miss was born. She stated to me that Dr. G. does not want
Gracie to be under any added stress pre or post op so they are going to
locate a mandarin speaking translator that knows Taiyuan dialect. This
translator will be at our disposal when Gracie is in the hospital. Ok,
really!?!?!?
WOW! Thank you Jesus for your attention to all the little details that help us so.
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Gracie proud of her school work. |
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Gracie and Rachel playing "listen to my heart" Gracie knows exactly where to listen. |
So now, we wait for May 24th. It's nice to be able to come up for air. We're wrapping up our school year, playing outside, doing crafts and just being still together before our world changes for a little while. Gracie is such a little doll! She fits in so well at our home. We all love her to pieces, she definitely fits the bill as far as being the youngest in the family. We are so grateful to have followed Jesus into the unknown of Gracie Faith. I spent several months agonizing over how Gracie would be healed and Jesus had it all figured out and WAY BEYOND what we expected. Growing in our faith, loving the children sent to us from above, bonding our marriage even more in Christ, well, it brings me to my knees praising the Lord for all He has given me. When I think about where I came from and where I am today. I find myself in awe of God's never failing forgiveness and love.
Please pray for our family, especially Gracie Faith and the little girls that love her so very much. I will be updating on Facebook and my blog post surgery so please check in with us.
Thank you all for the prayers.
Stay strong in Christ,
Amy